Julie's Story

Today I was listening to a Rachmaninoff concerto, something which I had begun to play at 18 when I got to college and was asked by my piano teacher why I wasn’t a piano major.  Forward 20 years, and I’m struggling to play songs that I played with ease and admirable technique at 10 years old, after just a year of lessons.  Why?  Because I wore 5 years of ‘traditional’ orthodontics while growing an entire foot.  I grew in restraints, such that my palate and skull did not keep pace with the rest of my body, and what is worse, I was given a headgear, which yanked my upper palate into the top and back of my skull, compressing cranial sutures, compressing (look at a diagram of the skull) brain matter, tissues, muscles, nerves, and veins. 

From the time I wore headgear, onward, my neck posture was never the same.  My neck moved as far forward as my maxilla was yanked back, in my body’s attempt to preserve breathing space.  I lost part of my lower lordosis, and wondered why, in dance class, I suddenly lost inches upon inches of flexibility.  My shoulders were constantly locked, and my concentration went from bad to worse.  I began to suffer with chronic sinusitis.  Over time, year by year, I lost facility in my right arm.  Talent meant that I could ignore it, but by 22, I gave up piano, so confused and overwhelmed that my right fingers wouldn’t move as fast.  At 39, I’m spending everything I have to maintain a posture that is in no way comfortable, safe for my neck, or stable.  I gave up my opera career (and it really was a career) 3 years back.

Think about it:  an orthodontic headgear is primarily used on those who have significant facial mal-development.  This means that those who require a headgear already have an overbite and crowding in their upper jaw, which has to do with a lack of proper growth in the upper jaw and the uppermost parts of the jaw.   For the lower jaw to come forward properly, the cheekbones, palate, and upper jaw in general must be developing at pace with the rest of the body.  Because of serious asthma and allergies and ensuing open-mouth breathing, mine did not, so I had crowding in my upper jaw.  What the headgear did was take an already vitally serious issue, and make it many times worse, so as to create the appearance of normalcy in my mouth. 

Instead of helping me develop the upper part of my face and encouraging the lower jaw to come forward, they pulled with great force the upper part of my face/jaw backwards, to pull teeth backwards, against the direction of growth, in order to make room for crowded teeth.  What they should have done is expanded the upper jaw to help it grow, and make room for crowded teeth in the logical direction.  Because my upper jaw is now set further back that it was supposed to be, my lower jaw is forced backwards because it too cannot be where it is supposed to be, because it cannot go more forward than the upper jaw.  This creates compression in my TMJ and makes the problem even worse.  Now, when my lower jaw wants to move further forward to a place where the TMJ can operate comfortably, my lower jaw has to come out in front of it, but if I do this, I cannot chew or speak.  Try to place your lower jaw in front of your upper jaw and see what happens when you try to chew and speak, it becomes impossible.  In any case, because I do not chew, swallow, or speak in that position, I have to force my upper jaw backwards and after having done this for years, the TMJ joints are fully dysfunctional.  Even the standard medical community has agreed this was caused by headgear, and is a problem so bad that any surgeon worth his salt has said no to touching it, since so much is in disarray and the problem is anything but clearcut, unilateral, or even bilateral. 

So of course, for 25 years of my life, I have been further retracting my lower jaw so as to chew, speak, and appear normal.  It’s a terrible way to live.  X-rays show that I have 35% of the breathing space of a normal adult in nasal and pharyngeal cavities.  This most certainly explains the chronic fatigue and sinus infections I had as a teenager.  It also explains the sleep apnea I was diagnosed with years ago.

Even if an orthodontist that still “believes” in tooth extractions and headgears would tell me “yes, but you might have had a sleep apnea even without orthodontics because you had an overbite,” I could answer, “but does that make it right to pull my upper maxilla backwards, cramping an already cramped breathing space?”.

Dr. Hermann Sailer looked at me.  He is one of the foremost orthognathic surgeons in the world.  Without me saying anything, without reading the forms I had just filled out, he said “victim of headgear.”  He showed me exactly where headgear retracts the upper jaw into the skull on my x-ray, and made it quite clear and obvious how this forever alters the growth pattern such that the face grows even longer, and loses its horizontal development. 

It’s now been more than 20 years since I was a teenager that I wake up choking at night, and the orthodontic community needs to answer to this.  Five years of allowing someone to restrain my growth and pull hard on my skull while compressing everything within could not have been a good thing by any means.  For the past century, we’ve had alternatives to headgear and growth restriction, such as maxillary expansion and even oral exercises to help develop the lower jaw forward.  The BioBlock and Orthotropics have been around for decades, the Crozat has been around since the 1920’s, the ALF has been around for decades and there are many others.  So if an orthodontist tells you that limiting the forward growth of your upper jaw, or extracting teeth to make room is the only answer, I urge you to think twice.  

Showing 11 reactions

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  • Al Evans
    commented 2021-09-20 05:04:48 -0700
    I would like to perform extraction/retraction orthodontics with a shovel on the so called medical professionals that ruined my airway and face when I was a defenceless child.
  • Jennifer Lackey
    commented 2021-05-25 13:54:45 -0700
    I have a very similar story and due to some of these rude comments I don’t feel comfortable sharing much. But I will say this, my story is very similar to Julie’s and I’ve had chronic sinus issues since getting my headgear at age 7. I’ve suffered 24 years of chronic pain misdiagnosed as “migraines” and only recently learned that the headgear was the cause of my chronic face pain. I can vividly remember crying and vomiting as a child because the bones in my face hurt so badly. The headgear needs to be banned and if you didn’t live it AS A PATIENT maybe think twice before committing about “facts.” I doubt you’ve ever examined Julie’s mouth. And it’s not “beating a dead horse” when there are people who could experience life-changing pain relief by learning where their pain came from.
  • Kim Henry
    commented 2021-05-01 18:01:51 -0700

    Read my last post again. Then read it again. Then read it over and over until your get it into your head. Don’t just make stuff up in your head.

    1. The last time I remember headgear being used by a sizable number of dentists was the 1980s. (Unless you are talking about reverse pull headgear, which protracts the maxilla forward in very young maxillary deficient patients.) We have been using Herbst and other appliances instead for a long time. You ARE beating a dead horse to death.

    There was also high-pull headgear, intended to intercept excessive maxillary descent and gummy smiles. Compliance was never good and it had limited benefit, so we have to resort to surgery as our only remedy for that.

    2. We never got distalization of the entire maxilla with headgear. With 16 hour a day wear, the most we could usually get was anchorage of the molars to decrowd the anteriors when premolar extraction was unavoidable.

    3. To my knowledge, there are no scientific studies that correlate chronic sinus problems with either extraction orthodontics or headgear. It is a figment of your imagination. Allergies and thus sinus problems usually occur with more age with a hyper-functional immune system. You must think that just because sinus problems usually surface AFTER orthodontics, orthodontics necessarily causes them. There is no causation.

    Too many cases were done by premolar and even molar extraction in the past, it is true. This started to change in the 1980s. It is impossible to do some orthodontic cases without extractions. Expansion has its limitations, especially in adults. Never having done orthodontics, you cannot comprehend that fact.

    Mark Twain once wryly observed that it is easier to fool someone than convinced them that they have been fooled. You are the perfect example of what Twain was talking about.
  • Cindy Tarotreader
    commented 2021-05-01 06:47:50 -0700
    I think it is really sad how many dentists have commented on this with “why are we beating a dead horse” with this topic,”blaming your sinus issues on headgear is a far stretch”. It doesn’t take a genius to see that yes, this was wrong, the dentists even admit to it here in your comments, yet you’re just expected to turn a blind eye. Like it’s just too bad for you that dentistry has been taking a long time to come out of a mid evil time period… it’s still struggling to move past this.

    True professionals in any field will acknowledge when something from the past was wrong, but it should never be something that is callously swept under the rug. Your decrease in your quality of life, a life that you would have had, should non of this had been done deserves to be heard and if there are dentists and orthodontist worth their salt they will work to find ways to fix the wrongs that have been done in the past.

    The dental communities response here is truly disappointing but it reflects what so many of us know, that many of them are strictly in it for the money. There’s damn good ones out there, but they are harder to find than the egotistical money sucking versions in dentistry.
  • Kim Henry
    commented 2020-08-26 18:50:50 -0700
    Most adults, if they had orthodontics at all, did not have headgear. Yet many patients have chronic sinus infections. The maxillary sinus is one of the poorly designed parts of the human body. It is a basin where fluid collects and there is no drain. Bacteria frequently infect the fluid. Why does the fluid form? Frequently because of allergies. I saw evidence of chronic sinus inflammation on a CAT scan today I had taken for planning implant surgery. The patient had never had orthodontics, much less headgear.

    Blaming chronic sinus problems on childhood headgear would be quite a stretch. We might as well blame ingrown toenails on headgear while we are at it.
  • John Smith
    commented 2020-08-26 07:39:12 -0700
    I had headgear when I was a kid, and now have chronic sinus infections. That does not make it 100 percent attritutable, but it is something I suspect.

    I wonder if there are ways to help reverse the effects of headgear, any device or procedure that can help undo the effects? If anyone knows of anything please post, thanks.
  • Kim Henry
    commented 2020-03-26 19:52:04 -0700
    LOL! “Orthotropics” is nothing new, and paying attention to facial profile is something orthodontists have done for years.

    NOBODY uses a Croat anymore and for good reason. They are difficult to fabricate and adjust, and offer poor control.
  • Kim Henry
    commented 2020-02-02 18:31:09 -0800
    Why are we beating a dead horse? I have not used a headgear and class II elastics in 20 years of doing orthodontics. I know of no dentist around me who uses headgear. Herbst appliances and other devices replaced headgear a long time ago.

    There are a lot of things that can cause sleep apnea.

    Severely crowded cases often cannot be treated without extractions. Sorry, that is a fact.
  • Dawn Turmenne
    commented 2019-08-03 07:06:48 -0700
    I, too, have been waking up choking at night! In fact, I have been saying those exact same words for years! I am so sorry, and wish that you and I and those affected by this horrible practice could be able to get help! It seems like either money, (for me), or stubbornness, as you mentioned with doctors not wanting to get involved, makes it seem quite impossible for us to get the help we need! I try to be positive, but it is hard when the for some reason “worshipped” medical community won’t help.
  • Jackie Sicilian
    commented 2019-07-20 14:36:46 -0700
    Headgear should be stopped there has to be better ways to treat this. I had braces for 3yrs, headgear at night, it was awful. Now I’m 57 and have fibromyalgia for last 6 years
    It has destroyed my quality of life and im on disability too early. My jaw/tmj is killing me cuz I have a tooth that needs to be pulled or root canal, which will make everything worse.
  • Erin Danes
    commented 2017-02-02 13:12:44 -0800
    I have the same symptoms as Julie and also had a headgear and bionator (moves lower jaw) as a child. No professional ever connected my symptoms to this, not even my dentist. I’m saddened by this as I didn’t have a choice whether to have these procedures, I was only 8 years old.

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